Page History

Bill said to migrate content below from US Data Definition. Looks like Philip now needs to revise, esp. where files are crossed out (per Bill):

See attachments for Ontology and Mapping Documentation.

^ShrineNational_ICD9_Display.zip|\
^Mapping_Docs.zip|\
^Mapping Best Practices.docx|\
^SHRIMP User Guide.doc|\
^ShrimpETL_Documentation.docx|\
^Shrine_National_Ontology.zip|\
^Shrimp_Fragments.zip|\

Step-by-Step Mapping Example

^Shrimpdem_age-core.csv|\
^age-site-example.csv|\
^dem_age-map.csv|\
^SHRINE-US-age_mappings.xml|\
^SHRINE-US-age_mappingsV2.xml|\
^AdapterMappings_age.xml|\

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SHRINE National Pilot was an implementation of the SHRINE technology in order to create a demonstration network that included selected academic health centers from across the United States. The demonstration focused on discovering co-morbidities related to the primary diagnoses of autism and diabetes. Each participating site secured regulatory and policy approval and then designated a limited group of researchers who tested the network and performed the research during the demonstration period.

Pilot members included The Clinical Translational Science Institute - University of Washington,Cincinnati Children's Hospital Medical Center, The University of Texas Health Science Center at Houston, Wake Forest Baptist Medical Center, Michigan Institute for Clinical & Health Research, Boston Children's Hospital, Partners Healthcare, and University of California, San Francisco.

View the SHRINE National Pilot poster  presented at AMIA CRI 2013:

SHRINE National Poster_3 18 2013.pdf

SHRINE Ontology for National Demo:

Shrine_National_Ontology.zip

SHRINE-US Data Requirements:

• The patients must be diagnosed with either Autism Spectrum Disorders (ICD9 299.) or Diabetes Mellitus (ICD9 250.) at least once between 6/01/09 – 5/31/11.
• Demographics include only age, gender, race and ethnicitiesethnicity.
• No Labs and Medications

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